Past Projects

Landscape of Digital Navigation in California 

Funded by the California Health Care Foundation, we developed this white paper to characterize the current digital navigation landscape of safety net primary care clinics in California and provide recommendations for best practices related to digital navigation across diverse primary care settings. 

Centering Equity in Digital Health: Solution Design 

This first module of a three-part series, developed in partnership with the American Medical Association, focuses on how an equity-first approach can be applied to digital health solution development, through meaningful engagement with and formal accountability to marginalized user communities across all phases of the design process. 

Centering Equity in Digital Health: Solution Implementation 

In this second module of a three-part series, developed in partnership with the American Medical Association, we discuss strategies for implementing and operationalizing digital health solutions that benefit and do no harm to all patients. Because of the critical role that safety-net settings play in delivering care to marginalized patients, this module centers the considerations for safety-net settings, in line with the value of “centering the margins.” However, lessons about delivering equitable care through innovation are broadly applicable across care settings. 

Centering Equity in Digital Health: Solution Evaluation 

In this final module of a three-part series, developed in partnership with the American Medical Association, we focus on how to position technology so that it can improve health for all. Digital health interventions exclude and harm communities that have been marginalized by the US health system by way of historical and current injustices. This necessitates an equity-first approach by evaluators assessing digital health innovations. 

Bridging the Digital Health Divide Series 

In collaboration with the California Health Care Foundation, we created a series of briefs focused on how to create equity and inclusion during technology implementation and design to help health care providers, health plans, and developers reach everyone. The first brief covers how providers and plans can help communities better adopt health tools, and the second brief covers how designers can create more inclusive digital health tools. 

California Health Care Foundation Issue Brief.

Telemedicine for Health Equity Toolkit 

Developed in partnership with the Center for Care Innovations and with support from The Commonwealth Fund, the Telemedicine for Health Equity Toolkit helps remote care reach patients with low-incomes and from racial and ethnic minority groups to promote health equity rather than exacerbate health disparities.  

Four levels for considering telemedicine equity: leadership, providers and teams, engaging patients, and optimizing for the future.

Digital Health Equity - Stanford Department of Medicine Grand Rounds 

In September 2022, Dr. Sarkar mapped elements of health equity to the socioecological framework and identified high priorities for intervention to achieve digital health equity at Stanford Medicine Grand Rounds.

Implementing Innovative Solutions with an Equity Lens, AMA Innovation Academy 

In August 2021, Dr. Lyles outlined best practices for implementing new health care technologies—including telehealth—in practice in an equitable, inclusive way focusing on both the impact to marginalized and minoritized patients and the clinicians and systems that care for them, at the American Medical Association Innovation Academy.

The Digital Divide: Addressing Patient Barriers - AMA Telehealth Webinar  

In July 2020, Drs. Lyles and Sarkar presented key patient barriers to adopting telehealth and offered strategies, resources, and tools to reduce limitations to access at the American Medical Association Telehealth Webinar.

Therapy for People Who Can't Go to Therapy, New York Times Opinion 

 

In a guest essay for the New York Times Opinion, Dr. Adrian Aguilera highlights the promises and potential inequities in digital mental health. Questioning whether the proliferation of digital mental health is good news for our country, he says it depends. "America's mental health industry faces a stark choice: take advantage of this moment to get help to the millions who need it - including, especially, poor Americans and immigrants - or allow the inequalities that already exist to deepen." Dr. Aguilera also indicates signs of progress, including app-based programs like DIAMANTE. His piece adds a critical equity focus to the New York Times'  series on America's mental health crisis

Real-world insights from launching a Peer Mentoring Program in a Safety-Net Health Setting 

We conducted a real-world case study with InquisitHealth (now Pyx Health) Peer Mentoring Program. This showed strong uptake and enrollment among racial/ethnic minorities (83% non-white) and individuals with high comorbidity (79% had at least 3 chronic conditions). Participants also showed improvements in HbA1c. Most used phone calls instead of the app, highlighting the need for multi-modal approaches in peer coaching. Patient-centered approach, such as mentor matching and addressing social determinants of health, helped effectively engage diverse populations in remote care. Patients had substantial engagement with mentors and had significant improvements in clinical outcomes, expanding the program’s reach and impact. Coaching, technology, and interoperability can empower individuals and communities to lead and engage in healthier lives, all while improving access to care in vulnerable populations. The ability to leverage digital solutions to promote health literacy and chronic conditions management in low-income and racial/ethnic minority groups moves us a step closer to cultural and health evolution. 

Visual abstract depicting study findings

 


Publications

  1. Arévalo Avalos MR, Patel A, Duru H, Shah S, Rivera M, Sorrentino E, Dy M, Sarkar U, Nguyen KH, Lyles CR, Aguilera A. Implementation of a Technology-Enabled Diabetes Self-Management Peer Coaching Intervention for Patients With Poorly Controlled Diabetes: Quasi-Experimental Case Study. JMIR Diabetes. 2024 Oct 15;9:e54370. doi: 10.2196/54370. PMID: 39405529; PMCID: PMC11522654. 

  1. Ma C, Shah ND, Rahman S, Dy M, Natsuhara KH, Elkhatib H, Kotwal A, Lyles C, Sarkar U, Aguilera A, Sharma AE. Landscape Assessment of Digital Navigation in the California Safety Net. UC S.O.L.V.E. Health Tech. July 2024. White Paper. 

  1. Dy M, Olazo K, Lyles CR, et al. Usability and acceptability of virtual reality for chronic pain management among diverse patients in a safety-net setting: a qualitative analysis. JAMIA Open. 2023;6(3):ooad050. Published 2023 Jul 11. doi:10.1093/jamiaopen/ooad050 

  1. Purnell L, Sierra M, Lisker S, Lim MS, Bailey E, Sarkar U, Lyles CR, Nguyen KH. Acceptability and Usability of a Wearable Device for Sleep Health Among English- and Spanish-Speaking Patients in a Safety Net Clinic: Qualitative Analysis. JMIR Form Res. 2023 Jun 5;7:e43067. doi: 10.2196/43067. PMID: 37098152; PMCID: PMC10280334. 

  1. Sarkar U, Lee JE, Nguyen KH, Lisker S, Lyles CR. Barriers and Facilitators to the Implementation of Virtual Reality as a Pain Management Modality in Academic, Community, and Safety-Net Settings: Qualitative Analysis. J Med Internet Res. 2021 Sep 22;23(9):e26623. doi: 10.2196/26623. PMID: 34550074. 

  1. Lyles, C. R., Sharma, A. E., Fields, J. D., Getachew, Y., Sarkar, U., & Zephyrin, L. (2022). Centering health equity in telemedicine. The Annals of Family Medicine, 20(4), 362–367. https://doi.org/10.1370/afm.2823 

  1. Blacklow SO, Lisker S, Ng MY, Sarkar U, Lyles C. Usability, inclusivity, and content evaluation of COVID-19 contact tracing apps in the United States. J Am Med Inform Assoc. 2021 May 22:ocab093. doi: 10.1093/jamia/ocab093. Epub ahead of print. PMID: 34022053. 

  1. Nouri S, Khoong EC, Lyles CR, Karliner L. Addressing equity in telemedicine for chronic disease management during the COVID-19 pandemic. NEJM Catalyst. 2020. doi:10.1056/CAT.20.0123 

  1. Lyles CR, Sarkar U, Patel U, Lisker S, Stark A, Guzman V, Patel A. Real-world insights from launching remote peer-to-peer mentoring in a safety net healthcare delivery setting. J Am Med Inform Assoc. 2020 Nov 12:ocaa251. doi: 10.1093/jamia/ocaa251. Epub ahead of print. PMID: 33180917. 

  1. Fontil V, Khoong EC, Hoskote M, Radcliffe K, Ratanawongsa N, Lyles CR, Sarkar U. Evaluation of a Health Information Technology-Enabled Collective Intelligence Platform to Improve Diagnosis in Primary Care and Urgent Care Settings: Protocol for a Pragmatic Randomized Controlled Trial. JMIR Res Protoc. 2019 Aug 6;8(8):e13151. doi: 10.2196/13151. PMID: 31389337; PMCID: PMC6701158. 

  1. Nouri SS, Avila-Garcia P, Cemballi AG, Sarkar U, Aguilera A, Lyles CR. Assessing Mobile Phone Digital Literacy and Engagement in User-Centered Design in a Diverse, Safety-Net Population: Mixed Methods Study. JMIR Mhealth Uhealth. 2019;7(8):e14250.  

  1. Tieu L, Hobbs A, Sarkar U, Nacev EC, Lyles CR. Adapting Patient Experience Data Collection Processes for Lower Literacy Patient Populations Using Tablets at the Point of Care. Medical Care. 2019 Jun;57:S140-S148. 

  1. Tieu L, Schillinger D, Sarkar U, Hoskote M, Hahn KJ, Ratanawongsa N, Ralston JD, Lyles CR. Online patient websites for electronic health record access among vulnerable populations: portals to nowhere? J Am Med Inform Assoc. 2017 Apr 1;24(e1):e47-e54. 

  1. Lyles CR, Sarkar U, Schillinger D, Ralston JD, Allen JY, Nguyen R, Karter AJ. Refilling medications through an online patient portal: consistent improvements in adherence across racial/ethnic groups. J Am Med Inform Assoc. 2016 Apr;23(e1):e28-33. 

  1. Fontil V, McDermott K, Tieu L, Rios C, Gibson E, Sweet CC, Payne M, Lyles CR. Adaptation and Feasibility Study of a Digital Health Program to Prevent Diabetes among Low-Income Patients: Results from a Partnership between a Digital Health Company and an Academic Research Team. J Diab Res. 2016;2016:8472391. 

  1. Sarkar U, Gourley GI, Lyles CR, Tieu L, Clarity C, Newmark L, Singh K, Bates DW. Usability of commercially available mobile applications for diverse patients. J Gen Intern Med. 2016 Dec;31(12):1417-1426. 

  1. Rajan JV, Moura J, Gourley G, Kiso K, Sizilio A, Cortez AM, Riley LW, Veras MA, Sarkar U. Understanding the barriers to successful adoption and use of a mobile health information system in a community health center in São Paulo, Brazil: a cohort study. BMC Med Inform Decis Mak. 2016 Nov 17;16(1):146. 

  1. Quan J, Lee AK, Handley MA, Ratanawongsa N, Sarkar U, Tseng S, Schillinger D. Automated Telephone Self-Management Support for Diabetes in a Low-Income Health Plan: A Health Care Utilization and Cost Analysis. Popul Health Manag. 2015 Dec;18(6):412-20. 

  1. Tuot DS, Leeds K, Murphy EJ, Sarkar U, Lyles CR, Mekonnen T, Chen AH. Facilitators and barriers to implementing electronic referral and/or consultation systems: a qualitative study of 16 health organizations. BMC Health Serv Res. 2015 Dec 19;15:568. 

  1. Tieu L, Sarkar U, Schillinger D, Ralston JD, Ratanawongsa N, Pasick R, Lyles CR 
    Barriers and Facilitators to Online Portal Use Among Patients and Caregivers in a Safety Net Health Care System: A Qualitative Study, J Med Internet Res 2015;17(12):e275 

  1. Garg SK, Lyles CR, Ackerman S, Handley MA, Schillinger D, Gourley G, Aulakh V, Sarkar U. Qualitative analysis of programmatic initiatives to text patients with mobile devices in resource-limited health systems. BMC Med Inform Decis Mak. 2015 Feb 6;16:16. 

  1. Ratanawongsa N, Handley MA, Sarkar U, Quan J, Pfeifer K, Soria C, Schillinger D. Diabetes health information technology innovation to improve quality of life for health plan members in urban safety net. J Ambul Care Manage. 2014 Apr-Jun;37(2):127-37. 

  1. Lyles CR, Schillinger D, Lopez A, Handley M, Ratanawongsa N, Sarkar U. Safety events during an automated telephone self-management support intervention. J Diabetes Sci Technol. 2013 May 1;7(3):596-601. 

  1. Hilton JF, Barkoff L, Chang O, Halperin L, Ratanawongsa N, Sarkar U, Leykin Y, Muñoz RF, Thom DH, Kahn JS. A cross-sectional study of barriers to personal health record use among patients attending a safety-net clinic. PLoS One. 2012;7(2):e31888. 

  1. Sarkar U, Karter AJ, Liu JY, Adler NE, Nguyen R, López A, Schillinger D. Social disparities in internet patient portal use in diabetes: evidence that the digital divide extends beyond access. J Am Med Inform Assoc. 2011 May 1;18(3):318-21. 

  1. Sarkar U, Piette JD, Gonzales R, Lessler D, Chew LD, Reilly B, Johnson J, Brunt M, Huang J, Regenstein M, Schillinger D. Preferences for self-management support: findings from a survey of diabetes patients in safety-net health systems. Patient Educ Couns. 2008 Jan;70(1):102-10.  


Past Events